Friday, April 23, 2010

We Love Liam!


I would like to introduce you to Lynn of Satsuma Letter Press. Not only is she a talented woman, she is the mother of Liam, a charming 6 year old boy with Type 2 Spinal Muscular Atrophy. Lynn is trying to raise money to renovate their bathroom to make life just a bit more accommodating for Liam. I have been so moved by her story, her needs and the outpouring of support from this community of independent businesses that I am proud to be a part of. Part of their story and the need for the fundraiser, in Lynn's words:

We moved from Portland to the small college-town of Corvallis almost two years ago. Our single level home here has plenty of open space that allows Liam the freedom of movement and play that we want for him. This summer, though, we are planning to remodel the bathroom to be fully accessible. We'll take out the bath tub and replace it with a walk-in/roll-in shower with a built-in bench seat. Liam will always require assistance to bathe, but it's been well over a year since I've been able to safely and comfortably give him a bath in the tub. We'll also install a wall-mounted sink so that Liam can drive up to it himself and wash his own hands easily. Our wish, as ever, is to provide Liam with as much independence as possible in as many ways as possible.

We are very fortunate to have had a special needs trust established for Liam shortly after his diagnosis. This trust has provided so many essential things when our insurance has failed to come through – Liam's SnapDragon; various respiratory and durable medical equipment; a scary week long stay in the PICU in Portland; occupational and physical therapy ... As you might well imagine, these things add up, quickly, relentlessly. The bathroom remodel is just one expense, with others sure to come.

This is the first time we've chosen to reach out to a larger community to ask for financial help. It's difficult to ask, but we all need help, in one form or another, from time to time. Four years ago when Liam was diagnosed, Satsuma Press was just a vague dream and I had never read a single blog, let alone thought I'd ever start my own ... I have been astonished, again and again, by the kind of community that exists online, linking people together from points all over the world. When I think of this, I am hopeful that the word will spread and that people will be moved to help. That said, please forward this, post about it on your own blog, tweet about if you like. Please know that we don't expect this; we will be delighted if you are able to help, whether that is financially or by keeping the momentum going. We have no idea what sort of outcome can be expected, but I am full of optimism. Every bit, small or large, will help.


In advance – thank you, thank you.

You can find Liam's story on the blog Liam's family has started and find out how you can help support a family hoping to provide a fundamental need to their small son. We are happy to be part of the 50 artists/studios/businesses that have donated prizes to the fundraiser, which begins today! Click here to learn more.

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Each of the below listed artists and businesses have donated to the fundraiser:

1 comment:

  1. Thanks for posting this -- I just forwarded to everyone I know. Liam is such a sweet boy and Lynn is so dedicated. Thanks.

    ReplyDelete

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